The Center for Improving Value in Health Care (CIVHC) is proud to announce the publication of its first internally led research project in the American Journal of Hospice and Palliative Medicine. Titled “Disparities in End-of-Life Care: A Retrospective Study on Intensive Care Utilization and Advance Care Planning in the Colorado All Payer Claims Database,” the study examines how race, ethnicity, sex, and geographic location affect access to and quality of end-of-life (EOL) care for Coloradans. Most people prefer to die at home as opposed to in a hospital, where EOL care is often emotionally and financially burdensome to patients and families.
Intensive services at end-of-life disproportionally impact racial and ethnic minorities, rural residents, and lower socioeconomic seniors. Advance Care Planning (ACP) reduces unwanted medical interventions and increases the use of hospice services, yet few studies have evaluated whether racial and ethnic disparities exist surrounding ACP and utilization of intensive EOL medical care.
Previous research has primarily focused on Medicare Fee-for-Service covered lives, this unique study using claims from Colorado’s All Payer Claims Database (CO APCD) included nearly 93,000 people across commercial, Medicaid, and Medicare FFS and Advantage plans from 2018-2021. Comprehensive demographic and utilization data in the CO APCD enabled CIVHC researchers to examine how race, ethnicity, and geography affected ICU stays, ED visits, and ACP adoption, offering one of the only large-scale, multi-payer analyses to explore these inequities at the end-of-life.
CIVHC’s study indicated significant disparities in the use of ICU stays, emergency department visits, and 30-day hospital readmissions. Notably, Hispanic, Asian, and Black people were more likely to experience intensive care at the end of life, and American Indian and Alaska Natives were less likely to have ACP compared to White people, even when controlling for comorbidities.
“Our research highlights racial and geographic disparities in end-of-life care across Colorado,” said Darcy Holladay Ford, PsyD, MA, LPC, RDN, CIVHC’s Director of Research, and principal investigator and lead author on the project. “These racial and geography care variations point to a pressing need for policies and interventions that ensure everyone receives care aligned with their values and needs.”
The study also found that rural residents were likelier to visit emergency departments but less likely to have ICU stays or engage in ACP. ACP, a key measure of patient-centered care, was associated with significantly increased odds of intensive service use across the board, indicating that Coloradans who had chronic conditions used ACP to help advocate for their needs
“This milestone publication underscores the power of the CO APCD in driving data-informed solutions for health equity,” said CIVHC CEO and President Kristin Paulson, JD, MPH. “We’re thrilled to see our team’s rigorous work contribute to national conversations around equity and patient-centered care at end-of-life.”
This is the first peer-reviewed research project published by CIVHC analysis that uses CO APCD data in-house for an in-house analysis. The article abstract is available online through Sage Journals, or a full version is available on the CIVHC website.
CIVHC has supported hundreds of peer-reviewed publications by providing local and national researchers with access to data from the CO APCD. CIVHC’s research team is also available to help other organizations with research projects and getting published. To learn more about how CIVHC can help you with an upcoming data or research project, contact us at ColoradoAPCD@civhc.org.